Reading and Resources List for Parents
Helping Children Understand Alzheimer's Disease: About.com's list of web sites.
See the other Reading and Resources lists for Professionals, Teens and Children.
See the ElderCare Bookstore for complete list of recommended readings
36 Hour Day: A Family Guide To Caring
for Persons With Alzheimer's Disease, Related Dementing Illnesses, and Memory Loss in
Later Life. 3rd ed., by Mace, N.L. Rabins, P.V.. Baltimore, MD: Johns Hopkins
University Press. 1999. 352 p.
This practical and detailed reference book provides a wealth of information to families
on giving care to patients with Alzheimer's disease or related disorders. The book
presents background information on dementia, brain disorders, and the causes of dementia,
and recent research on the pathology of dementia. Beginning with the problem of getting
medical help (both accurate diagnosis and treatment) for the impaired person, the book
gives practical suggestions and advice on how families and caretakers can deal with
problems in independent living; problems arising in daily care; medical problems; problems
of behavior and mood; getting outside help; children and teenagers; financial and legal
issues; nursing homes and other living arrangements; and how caring for an impaired person
affects the caretaker. Appendices list pertinent health and support organizations; where
to buy or rent supplies; U.S., State, and protectorate agencies; and the rights of
hospital and nursing home patients. 43 references.
to Children and Teens About Alzheimer's Disease Brochure/Pamphlet: Alzheimer's
Association. Chicago, IL: Alzheimer's Association. 1997. 7 p. (800) 272-3900; (312)
335-8882 (TDD); FAX (312) 335-1110. Internet access: http://www.alz.org. PRICE: Single
copy free. Order number: 209Z.
"Talking With Children and Teens About Alzheimer's Disease: A Question and Answer Guidebook for Parents, Teachers and Caregivers." McCrea, J.M.; et al. Pittsburgh, PA: University of Pittsburgh, Center for Social and Urban Research. 1992. Available from Generations Together. University of Pittsburgh, Center for Social and Urban Research, 121 University Place, Suite 300, Pittsburgh, PA 15260. (412) 648-7150. FAX: (412) 624-4810. PRICE: $15.00. Available from the Pennsylvania Department of Aging for $15. Call 412-648-7150
This handbook was developed for use by parents, teachers and caregivers to help answer
the questions that children and teenagers have about Alzheimer's Disease and to help them
interact with relatives and other people with dementia. Approaches to discussing
Alzheimer's Disease with preschool children, school age children, and teenagers are
discussed. A series of questions children might ask are presented and discussed, dealing
with such topics as personality changes, awareness, behavior, memory loss, and how a child
can appropriately respond to unfamiliar behavior and interact with the person with
Alzheimer's Disease. Examples are given of activities that children or teenagers can enjoy
with an older person with dementia. A list of resources is included, providing names of
organizations, books for various age levels, and audiovisuals.
Available from ElderCare Online www.ec-online.net ©2000 Prism Innovations, Inc.