The Beacon Newsletter
I would like to dedicate this issue of the Beacon newsletter to all of you who are caring for a spouse. I hope that the phrase eldercare doesnt upset you. I use it generically: I know that many of you are in your 50s and even if you are older than that, you dont consider yourself elderly. I try to break away from it from time to time, so please excuse me if it pops up too often.
Spousal caregivers have a difficult role to fill. Much to your credit, you take on the responsibility for your loved one after decades of a caring relationship. It is never easy to assume the caregiving role, but somehow those decades make it seem more purposeful. Many adult children who take on responsibility for their parents have distance (physical and emotional) that they need to overcome. For a caring spouse, it may only be emotional.
That is not to say that it is easy. The role is still fraught with painful emotions, negative attitudes and physical stress. We have two items in this newsletter that I hope will make the transition from caring spouse to caregiving spouse easier. Edyth Anns tips and Lousias poem are two permanent resources now available on our website.
Speaking of Edyth Ann: I am pleased to announce that she and Doug Keck (who cares for his wife with Picks Disease) are promoting a benefit for dementia caregivers. The CareGivers Fun Fest brings together a worthy cause and some good humor. Read more about it below. In honor of the two organizers, ElderCare Online and ALZwell Caregiver Support will donate 20% of the proceeds from online sales of its Prism Caregiver Education Series (sales from May 15 through July 31). Please browse through the store and help support the FunFest.
INSIDE THIS ISSUE
Views: Alzheimers Disease Research Updates
NEWS AND VIEWS: Alzheimers Disease Research Updates
We have added several new articles and news clips regarding recent scientific updates on Alzheimers Disease. We have been working closely with the Alzheimer Research Forum (http://www.alzforum.org) to bring you this breaking news. We also cull through numerous clipping services and publications to bring you well-written and insightful material.
We are very cautious about the articles that we add to our clipping service. Many times you will see self-serving press releases masquerading as news. Keep in mind that press releases are ALWAYS one-sided and OFTEN intended to pump up a companys stock price or to sell their products. We will note every item that we post that is a press release. Having said that, some press releases are useful and interesting. Be an alert reader!
PRISM CAREGIVER EDUCATION SERIES: Swing Music Promotion
proud to offer our educational series of booklets, workbooks and multimedia tools,
"The Prism Caregiver Education Series" through our caregiving websites,
ElderCare Online and ALZwell Caregiver Support. We offer our educational materials in a
variety of formats: printed booklets, portable CD-Roms, or online. -- choose the format
that works best for you!
In addition, four new customers this month will receive a complimentary copy of a great music CD: Swing City or Swing & Company: Live in Concert. I loved these CDs when I first bought them. The music is uplifting and familiar to most people. I think the music is appropriate for a caregiver or an individual with dementia.
Our Learning Resource Guides have been
developed with the goal of enhancing your understanding of the numerous complex area of
caregiving. We believe that if you have a greater sense of mastery over the skills of
caregiving, you can reduce stress and improve quality of life for both yourself and your
aging loved one. We carry seven titles, including:
The Prism Care Assistant Workbooks have been designed to reduce the complications of managing a loved one's personal affairs. By minimizing the distractions associated with handling someone else's day-to-day affairs, you can spend more quality time with your loved one and their healthcare professionals and less time trying to juggle too many responsibilities.
The Custom Packages that we developed demonstrate our understanding of the issues and needs that our community members face. They are intended to help you deal with specific issues. We all like some savings, so we reduced the cost by 25% for each of these packages.
Visit our secure online shop to browse through our titles at http://store.yahoo.com/eldercareonline/.
Remember, for the next two weeks we will be offering our loyal newsletter subscribers a 20% discount. Use coupon number SUBS5101 when ordering!
WAITING: A Poem by Louisa Pomeroy
Louisa wrote me recently and shared this touching poem.
I like to write Poetry during emotional times and at my husband's Funeral Service, my Minister read one I wrote, I would like to share it with you, if you don't mind.
waiting for a Telephone call,
of forty-two years,
Oh, how I
wish I could get his
because I can't lift him any more,
again for being so nice.
ALZHEIMERS ANSWERS: Diagnosing Alzheimers Disease: Tests, Procedures, and Issues
Last week we continued our popular Alzheimers Answers series with a special presentation by Dr. Scott Small on the topic of Diagnosing Alzheimers Disease: Tests, Procedures, and Issues. Dr. Small is from the Taub Institute for Alzheimers Disease and the Aging Brain at Columbia University.
but highly informative session covered topics such as:
The transcript for the chat session is now available. Click here to access it: http://www.ec-online.net/Community/transcript051101.htm
ACTIVIST ALERT!: CareGivers FunFest
We are now all familiar with the typical fund-raising activities of organizations serving people in need: dinner dances, marathons, bike races, 50-50 raffles, and numerous other time-tested approaches. But this year, be prepared for a different kind of fund-raiser that will help to provide respite for caregivers to individuals affected by dementia.
A group of
dedicated dementia caregivers have planned a CareGivers FunFest for July 28th
and 29th in Burlington, Iowa. The FunFest will give caregivers to loved ones with
Alzheimers Disease, Picks Disease and other related dementias a much needed
weekend of respite while enjoying the company of other caregivers and their friends. It
will also raise funds to fight Alzheimers Disease, Pick's Disease, and to assist
needy families with children at Christmastime.
The events are sure to raise awareness about the needs and issues that caregivers face. We all know the importance of good humor and respite: these events bring that point home. It is an event as much for caregivers to take a break, as much as it is for raising money.
ElderCare Online and ALZwell Caregiver Support will donate 20% of the proceeds from sales of the Prism Caregiver Education Series from May 15 through July 31 in support of this event. You can browse through our store at http://www.store.yahoo.com/eldercareonline.
FEATURED ARTICLE: Tips on Spousal Caregiving
When the loved one who a person is caring for is ones spouse, there is often a lot of misunderstanding about what the role of caregiver is and what it means. Children do not often have any idea or inkling of how it affects both parents, and the parents often have a hard time understanding their children and their role. Often these misunderstandings can cause great strain between parents and adult children.
You can read the complete set of ten insightful tips at: http://www.ec-online.net/Knowledge/Articles/spousetips.html,
Edyth Ann has written a series of practical tips for caregivers. They are posted to the Alzheimers & Dementia Care Channel at http://www.ec-online.net/alzchannel.htm.
KEEPIN UP WITH ALZWELL: Recognition, Questions & Answers, and Caregiver Stories
The National Alliance for Caregiving recently ranked ALZwell among the top caregiving websites, saying, There is so much here, it is truly a unique and valuable site where caregivers feel warmly welcomed and listened to. That is such a great compliment to Susan Grossmans work. I strive to continue to build and grow on her foundation to make ALZwell a responsive support service that meets the needs of dementia caregivers.
Dr. Franklin Cassel and I recently updated the Questions & Answers section of the ALZwell Caregiver Support website. We also added some very personal stories and the reflections of other caregivers. I see these features of ALZwell as two complimentary resources: one that focuses on very practical issues and needs; and the other that serves to unite caregivers in a common journey.
I welcome each of you to submit your own stories to the website and the Anger Wall as a way of releasing internal feelings and as a way to share with other caregivers who may feel alone or misunderstood.
Visit ALZwell Caregiver Support at http://www.alzwell.com.
CHAT SCHEDULE: Updates for May
Enter the chatroom from the front page of either website or at http://www.ec-online.net/chat.htm.
May 16 (Wednesday 1:00 to 2:00PM EST) Coffee Talk: Host Rich OBoyle welcomes caregivers for a social and networking discussion group on the topic of Meeting Other Caregivers.
May 16 (Wednesday 9:00 to 11:00PM EST) Bubbleheads Chatroom: Host Edyth Ann Knox leads a supportive chat group for dementia caregivers on the topic of Eating Tips.
May 17 (Thursday 9:00 to 11:00PM EST) ElderCare Answers: Host Rich OBoyle leads a self-help group for caregivers on the topic of Understanding Geriatric Depression.
May 23 (Wednesday 1:00 to 2:00PM EST) Coffee Talk: Host Rich OBoyle welcomes caregivers for a social and networking discussion group on the topic of Meeting Other Caregivers.
May 23 (Wednesday 9:00 to 11:00PM EST) Bubbleheads Chatroom: Host Edyth Ann Knox leads a supportive chat group for dementia caregivers on the topic of Spousal Caregivers Unite!
May 24 (Thursday 9:00 to 11:00PM EST) Healing Loss: Host Julie Siri leads a discussion group for people who have lost a loved one to premature death, Alzheimers Disease, or other illness.
May 30 (Wednesday 1:00 to 2:00PM EST) Coffee Talk: Host Rich OBoyle welcomes caregivers for a social and networking discussion group on the topic of Meeting Other Caregivers.
May 30 (Wednesday 9:00 to 11:00PM EST) Bubbleheads Chatroom: Host Edyth Ann Knox leads a supportive chat group for dementia caregivers on the topic of Caregiver Emotions and Attitudes
May 31 (Thursday 9:00 to 11:00PM EST) Healing Loss: Host Julie Siri leads a discussion group for people who have lost a loved one to premature death, Alzheimers Disease, or other illness.
Enter the chatroom from the front page of either website or at http://www.ec-online.net/chat.htm.
The Beacon is published bimonthly by ElderCare Online and ALZwell Caregiver Support. To subscribe to this free newsletter, visit the subscription information page at http://www.ec-online.net/Knowledge/Newsletters/subscribe.htm.
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